About Our Organization
– Giulianna’s Heart
The Origins of “Giulianna’s Heart™”
“Giulianna’s Heart™” was lovingly designed and created because I was blessed with a very special little girl. Giulianna Rose Rinaldi was born on June 19, 2008 with Down Syndrome, the most commonly occurring chromosomal condition, as well as two heart defects: Patent Ductus Arteriosus (PDA), a blood vessel that failed to close normally a few days after birth, and Ventricular Septal Defect (VSD), a hole in the lower chambers of her heart which was repaired via Open Heart Surgery at Children’s Hospital of Philadelphia on December 7, 2009. I collaborated with jewelry designer, Steven Lagos, for the production of “Giulianna’s Heart™”, which is intended to further awareness of Down Syndrome and Congenital Heart Defects and to benefit charities which promote awareness and improve the well-being of children with Down Syndrome or Cardiac Issues. Almost 50% of babies born with Down Syndrome experience heart issues, and 1 baby in every 100 is born with a congenital heart defect.
The Design Elements of “Giulianna’s Heart™”
The Heart represents love—the love for your child and the loving nature of people with Down Syndrome. The Abstracted H shape represents H for Heart, H for Hope, and the four Chambers of the Heart, for where there is Heart, there is Hope and where there is Hope, there is Heart. The Open Areas in the Heart represent Open Heart surgery, the openness of the Heart to love, and where true inner beauty lies, within the Heart. The seven groups of three Circle shapes symbolize Trisomy 21, the clinical term for Down Syndrome, as 95% of babies born with Down Syndrome receive three copies of the 21st chromosome. The three Rose Buds again symbolize Trisomy, but also represent new birth, new life, and my three beautiful daughters, who all share the middle name of Rose after my paternal grandmother, Rose Touch, and my mother, Agnes Rose Touch. The final element, the Diamond shape within the abstracted H, represents our rare gems, our lights, and the enlightening nature of people with Down Syndrome. Giulianna is my light and has guided me more in her little life than I ever could have imagined.
The Purpose of “Giulianna’s Heart™”
The purpose of “Giulianna’s Heart™” is to promote Down Syndrome and Cardiac Awareness and to provide 100% of the profits from the sale of “Giulianna’s Heart™” to selected charities.
All proceeds from today’s sales will benefit Reach for the Stars!!
-Kimberly Touch Rinaldi (Giulianna’s Mommy)
Reach for the Stars is an initiative of the Eastern Pennsylvania Down Syndrome Center
**Celebrating our Down Syndrome Community in Berks County **
If you have questions about purchasing a piece of jewelry please contact Nicole at firstname.lastname@example.org.